First question
Hi to everyone,
I’m not new to the group but until now haven’t asked any questions (reading the
posts give an enormous amount of info)
My husband & I have been following the BTD for 15 months. He’s and O and I’m an
A, so mealtimes are fun! He has unknowingly been eating a type O diet for many
years, as any avoids would make him sick, so to find this group was brilliant.
Six months ago husband had a colonoscopy and biopsy. He was diagnosed with
Lymphocytic Colitis which is a form of Microscopic Colitis. (quite uncommon}
Saw three doctors. None had heard of it, didn’t know what it was, how he got it
or how to treat it.
Finally saw a gastro Dr. who told him there was no cure & he would be on
medication for the rest of his life. Prescribed Sulfasalazine 500mg, 8 - 10
tablets per day. (The list of side effects to this med. is a worry!)
He can only tolerate 1 tablet per day and this causes memory loss and nausea.
He suffers a lot with arthritis back pain, and muscle pain (this is quite common
with the disease) but he’s not meant to take any aspirin or NSAID whilst on
these tablets.
Searched the web for info and finally found Dr Kenneth Fine in Texas who has
researched MC/LC. It seems there has been success taking Pepto Bismol and
Culturelle (a probiotic). We have been told that “patients would do well to do
their own research and attempt to remain knowledgeable and current, as few
doctors know much about MC”
Thanks a lot. That gave me a lot of confidence, leaves you feeling rather alone
- but I am trying!
Anyway, decided to try the PB and Culturelle alternative, but hit a brick wall
as neither is available in Australia.
I’m hoping someone can maybe suggest something similar to Pepto Bismol that I
am able to buy in the land of Oz.
Also, I’ve seen Inflazyme Forte and Zymflamend mentioned for aches and pains.
I’m wondering if these are aspirin based or what and whether they may be
suitable for him. I’ve asked at my health food store and pharmacy but again, no
luck. (Geee, we’re only in Australia, not the South Pole)
If I can tell them what’s in these they will try again, as it may be sold here
under another name or perhaps we can get something similar. Also, do you need a
prescription.
In the meantime I’ve now got him on a gluten free diet, which isn’t real easy as
they hide ‘em everywhere. (as well as being very compliant on the BTD - O i.e.)
Thanks for listening, would love any advice, help, suggestions etc.
Dale